I was watching some kids programmes with Johnathan - well more than I was comfortable with, but it wasn’t MY pleasure that was the consideration, but his. He has had a hard week.

I’ve just been watching a programme on the television where a group pf people came in and built a sensory garden for a particular family.

And finding them as well, actually. It is really easy for ANY child to lose things, but it’s easier generally speaking for children on the spectrum to lose things.

Did you ever play hide and seek when you were a child? I used to like it very much and played it quite a bit when with friends.

Did you ever play hide and seek when you were a child? I used to like it very much and played it quite a bit when with friends.

Well today is his birthday and it has been a great day. To see him develop and change through the years we have been together has been extraordinary.

Anyone who has a chronic condition tends to be on medication and/or using a form of walking aid - moving from sticks, to crutches.

I know you have realised by now that I ponder on things before I write them.

I wasn’t quite sure what to call this, to be honest with you. First, I want to start with thoughts about my seizure and afterwards and the long term effects you probably have no idea of, if you haven’t faced it or learned about it.

Do you ever watch cooking shows? I love watching them, but the thing I enjoy the most is when it’s a competition and the contestants help each other when they are stuck.

Yes, I know I don’t often talk about them, but actually, I do enjoy watching some of the events. Anything with horses, gymnastics in all its forms, and ice skating.

Oh my goodness! Hair cuts. Oh boy! To say that Johnathan didn’t like haircuts when he was young is ONE way of putting it!

Well actually the joy of knowing that over 3k of people are reading what I an writing. That is o precious, I have the fact you are doing so.

Well, you would never (or might) I don’t know, but cutting nails is TORTURE to a child that has sensory issues.

I had another fall earlier this evening. Annoying. I mean, REALLY annoying. I was trying to help Kevin by going into the porch area or the cats area.

By not? If you have laid down rules in the house, every one of your children MUST obey them 100% of the time, surely? Of COURSE we have to respond every time, don’t we?

There are what I think of as a few types of games in Johnathan’s life – ones that he found on the internet and was extremely careful about what he chose, even as a young child.

Ok, yes, If you’ve read anything in the past about the subject you will know I am a sucker for them – well, most of them.

Yes, I suppose it’s a weird topic for me to discuss, but that’s nothing new.  It’s the inspiration we get when we get it that we write about (ok, well I do, (as most discovery writers). 

And that is the simple truth - you have to realise that as a parent, carer or guardian of someone with special needs their need does NOT end once they have the diagnosis.